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KMID : 0603920140220040135
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Journal of Korean Academy of Occupational Therapy
2014 Volume.22 No. 4 p.135 ~ p.147
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A Study on the Life History of a Person With Amyotrophic Lateral Sclerosis Focused on Before and After its Onset
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Jang Jong-Sik
Song Byung-Nam
Lim Jae-Ho
Jeon Byoung-Jin
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Abstract
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Objective : By making use of a life history research method, this research described understanding what life is for clients diagnosed with amyotrophic lateral sclerosis (ALS). We were able to have an in-depth understanding of the physical and psychological experiences after the disease occurred. Based on these data, we should utilize effective work treatment arbitration with other clients.
Methods : To explain the physical functions and psychological changes from the management of ALS, in-depth interviews were conducted with two clients for thirty minutes, 7 to 10 times each. We carried out the experiment until no more additional findings occurred.
Results : Thus far, the two participants who took part in the research have had some physical experiences in common; such as a change in weight, limbs, and respiratory muscles, as well as dysphagia. However, they went through a different psychological experience; more precisely, One participant, Mr. Kim, who did not have his family members’ support, accepted his death calmly rather holding onto hope. On the other hand, the other participant, Mr. Choi, who had his family members’ support at first lived with hope for life rather than with fear of death, but he also seemed to prepare for his death as time passed.
Conclusion : From the above results, we can conclude that there are two different roles of an occupational therapist for their clients suffering from ALS. In full, at the early stage of the disease, the therapist should act as a rehabilitation expert who can comprehend and sympathize with the patient about the changes to their body, For the psychological and social functions, and during the terminal stage of the disease, the therapist should act as a hospice expert.
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KEYWORD
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Amyotrophic Lateral Sclerosis (ALS), Biographical research, Hospice, Occupational therapy
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